Helping families affected by

Kleine-Levin Syndrome

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What is KLS ?

KLS is a rare disorder characterised by recurrent bouts of excessive sleep associated with reduced understanding of the world and altered behaviour. KLS usually starts in the teenage years but can occur in younger children and adults. Each episode lasts days, weeks or months during which time all normal daily activities stop. Individuals are not able to care for themselves or attend school and work. People with KLS coming out of episodes will have little or no memory of what happened during an episode. Between episodes they have normal sleep, understanding and behaviour. KLS episodes may continue for 10 years or more. KLS is sometimes referred to in the media as "Sleeping Beauty" syndrome.

Kleine-Levin Syndrome | Give Donation

Give Donation

KLS Support UK is the only UK small charity representing families affected by Kleine-Levin Syndrome. Please help our small charity with funds.

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Kleine-Levin Syndrome | Become a Fundraiser

Become a Fundraiser

Become a Fundraiser for KLS Support UK and raise money to support medical research with the aim of finding the cause, treatment and ultimately a cure for KLS.

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Kleine-Levin Syndrome | Find Event

Take part in an Event

KLS Support UK promote events that allow fundraising for this cause. Events include runs, cycling and treks. Why not get involved and help our cause.

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Our Mission & Goals

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KLS Support

Support

Provide support to persons affected by KLS in the UK and their families.

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KLS Awareness

Awareness

Raise awareness of KLS in the UK amongst the medical profession and the general public.

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KLS Medical Research

Medical Research

Support medical research with the aim of finding the cause, treatment and ultimately a cure for KLS.

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KLS Other Groups

Work with other Groups

Co-operate with other KLS groups around the world to further these aims.

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Latest Video

Beth's Story, BBC Inside Out North West.

Latest News

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Psychological Support for Kleine-Levin Syndrome

View the presentation by Dr Laura Madeley - Guy’s & St. Thomas’ NHS Foundation Trust

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Opportunities to take part in Research

We are reaching out with a plea to the KLS families who attended the 2015 KLS Conference in Atlanta and those families engaged on the KLS Facebook page.

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Happy Volunteers

Become a Fundraiser to this great cause. Why not take on a personal challenge, organise an event or celebrate someone special who is bravely forging through life despite coping with KLS? Thank you for supporting KLS Support UK.

Tina Dutton

Tina DuttonFundraiser - Runner

Piff Jenkins

A. N. OtherFundraiser

Rodney Artich

A. N. OtherFundraiser

Weir Doe

A. N. OtherFundraiser

Jackson Pot

A. N. OtherFundraiser

Phillip Anthropy

A. N. OtherFundraiser

Eric Widget

A. N. OtherFundraiser

Giles Posture

A. N. OtherFundraiser

Gunther Beard

A. N. OtherFundraiser

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